• I am a pediatric oncologist with a clinical focus on solid tumors and research focus on disparities in end-of-life care. I am originally from Iowa, went to Carleton College in Minnesota for undergraduate before heading to Stanford for my medical training (medical school, residency, and fellowship). I joined the UAB faculty July 2018.
  • Selected Publications

    Academic Article

    Year Title Altmetric
    2022 Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi ProcessPediatrics.  150. 2022
    2022 Charting a path to high-quality end-of-life care for children with cancerCancer.  128:3586-3592. 2022
    2022 Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and BarriersJournal of Pain and Symptom Management.  64:e123-e131. 2022
    2022 Location of death and hospice use in children with cancer varies by type of health insurancePediatric Blood and Cancer.  69. 2022
    2022 SARS-CoV-2 vaccine acceptability among caregivers of childhood cancer survivorsPediatric Blood and Cancer.  69. 2022
    2022 A “Good Death” for Children with Cardiac DiseasePediatric Cardiology.  43:744-755. 2022
    2022 Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With CancerJournal of Palliative Care.  37:87-92. 2022
    2022 COVID-19 in Children with CancerCurrent Oncology Reports.  24:295-302. 2022
    2022 Pediatric Palliative Care Parents’ Distress, Financial Difficulty, and Child SymptomsJournal of Pain and Symptom Management.  63:271-282. 2022
    2022 Early palliative care is associated with less intense care in children dying with cancer in Alabama: A retrospective, single-site studyCancer.  128:391-400. 2022
    2021 SARS-CoV-2 in Childhood Cancer in 2020: A Disease of DisparitiesJournal of Clinical Oncology.  39:3778-3788. 2021
    2021 Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported DataJAMA Network Open.  4. 2021
    2021 Quality measures for end-of-life care for children with cancer: A modified Delphi approachCancer.  127:2571-2578. 2021
    2021 Impact of location of inpatient cancer care on patients with Ewing sarcoma and osteosarcoma—A population-based studyPediatric Blood and Cancer.  68. 2021
    2021 Risk, Racial Disparity, and Outcomes among Patients with Cancer and COVID-19 InfectionJAMA Oncology.  7:1064-1065. 2021
    2021 Impacts of COVID-19 on caregivers of childhood cancer survivorsPediatric Blood and Cancer.  68. 2021
    2021 To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric DisclosureJournal of Pain and Symptom Management.  61:211-215. 2021
    2020 Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill ChildrenJournal of Hospice and Palliative Nursing.  22:456-464. 2020
    2020 Riverview Terrace Team: A Novel Special Operations Forces Medic Role Emerges at the Forefront of the Fight Against COVID-19Journal of special operations medicine : a peer reviewed journal for SOF medical professionals.  20:136-138. 2020
    2020 Bereaved parents' views on end-of-life care for children with cancer: Quality marker implicationsCancer.  126:3352-3359. 2020
    2020 Hospital or Home? Where Should Children Die and How Do We Make That a Reality?Journal of Pain and Symptom Management.  60:106-115. 2020
    2020 Better Understanding the Importance of Palliative Care for Pediatric PatientsJAMA Oncology.  6:817-818. 2020
    2020 Acute Care Utilization at End of Life in Sickle Cell Disease: Highlighting the Need for a Palliative ApproachJournal of Palliative Medicine.  23:24-32. 2020
    2019 Supporting Family Caregivers of Adult and Pediatric Persons with LeukemiaSeminars in Oncology Nursing.  35. 2019
    2019 Disparities in inpatient intensity of end-of-life care for complex chronic conditionsPediatrics.  143. 2019
    2018 End-of-life care intensity in patients undergoing allogeneic hematopoietic cell transplantation: A population-level analysisJournal of Clinical Oncology.  36:3023-3030. 2018
    2018 Inpatient utilization and disparities: The last year of life of adolescent and young adult oncology patients in CaliforniaCancer.  124:1819-1827. 2018
    2018 The Patient Protection and Affordable Care Act dependent coverage expansion: Disparities in impact among young adult oncology patientsCancer.  124:110-117. 2018
    2017 Disparities in location of death of adolescents and young adults with cancer: A longitudinal, population study in CaliforniaCancer.  123:4178-4184. 2017
    2017 Disparities in the intensity of end-of-life care for children with cancerPediatrics.  140. 2017
    2017 Pediatric-specific end-of-life care quality measures: an unmet need of a vulnerable populationJco Oncology Practice.  13:e874-e880. 2017
    2017 End-of-life intensity for adolescents and young adults with cancer: A californian population-based study that shows disparitiesJco Oncology Practice.  13:e770-e781. 2017
    2017 Adolescent and young adult oncology patients: Disparities in access to specialized cancer centersCancer.  123:2516-2523. 2017
    2016 In Their Own Voices: The Reproductive Health Care Experiences of Detained Adolescent GirlsWomen's Health Issues.  26:48-54. 2016
    2015 Subcutaneous panniculitis-like T-cell lymphoma: Pediatric case series demonstrating heterogeneous presentation and option for watchful waitingPediatric Blood and Cancer.  62:2025-2028. 2015
    2010 Long-term outcome following pediatric liver transplantation for metabolic disordersPediatric Transplantation.  14:268-275. 2010

    Research Overview

  • My long-term goal is to establish EOL quality measures for children with cancer and leverage the measures to reduce disparities in EOL care. Cancer is the leading cause of disease-related death in children in the US, making it critical to optimize the quality of end of life (EOL) care received by children with cancer. However, there are no EOL quality measures for children with cancer. In contrast, there are National Quality Forum (NQF)-endorsed EOL quality measures for adults with cancer. These measures were essential in identifying disparities in EOL care in adults with cancer; underrepresented minorities and publicly insured are less likely to receive quality EOL care, informing pivotal intervention research to mitigate disparities. Lack of EOL quality measures for children dying with cancer prevents us from examining disparities in EOL care.
  • Education And Training

  • Master of Science in Health Policy Analysis, Stanford University 2018
  • Doctor of Medicine, Stanford University 2010
  • Full Name

  • Emily Johnston