Selected Publications

Academic Article

Year Title Altmetric
2023 African American Recruitment in Early Heart Failure Palliative Care Trials: Outcomes and Comparison With the ENABLE CHF-PC Randomized TrialJournal of Palliative Care.  38:52-61. 2023
2022 Adaptation of Remote Symptom Monitoring Using Electronic Patient-Reported Outcomes for Implementation in Real-World SettingsJco Oncology Practice.  18:e1943-e1952. 2022
2022 Barriers to recruitment into emergency department-initiated palliative care: a sub-study of a multi-site, randomized controlled trialBMC Palliative Care.  21. 2022
2022 Evaluating the implementation and impact of navigator-supported remote symptom monitoring and management: a protocol for a hybrid type 2 clinical trialBMC Health Services Research.  22. 2022
2022 The Project ENABLE Cornerstone randomized controlled trial: study protocol for a lay navigator-led, early palliative care coaching intervention for African American and rural-dwelling advanced cancer family caregiversTrials.  23. 2022
2022 Values elicitation among adults making health-related decisions: A concept analysis 2022
2022 Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and ApproachJournal of Pain and Symptom Management.  63:e705-e711. 2022
2022 A national profile of health-focused caregiving activities prior to a new cancer diagnosisJournal of Geriatric Oncology.  13:454-461. 2022
2022 A lay navigator-led, early palliative care intervention for African American and rural family caregivers of individuals with advanced cancer (Project Cornerstone): Results of a pilot randomized trialCancer.  128:1321-1330. 2022
2022 Completion of Patient-Reported Outcome Questionnaires Among Older Adults with Advanced CancerJournal of Pain and Symptom Management.  63:301-310. 2022
2022 An Early Palliative Care Telehealth Coaching Intervention to Enhance Advanced Cancer Family Caregivers’ Decision Support Skills: The CASCADE Pilot Factorial TrialJournal of Pain and Symptom Management.  63:11-22. 2022
2022 Bias reported by family caregivers in support received when assisting patients with cancer-related decision-makingCancer Medicine2022
2022 Proceedings of the Survivorship Care in Neuro-Oncology Workshop sponsored by the Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT)NOA.  4. 2022
2022 Unmet needs and health-related quality of life of dementia family caregivers transitioning from home to long-term care: A scoping reviewGeriatric Nursing.  43:254-264. 2022
2021 A cluster randomized controlled trial comparing Virtual Learning Collaborative and Technical Assistance strategies to implement an early palliative care program for patients with advanced cancer and their caregivers: a study protocolImplementation Science.  16. 2021
2021 Adapting ENABLE for patients with advanced cancer and their family caregivers in Singapore: a qualitative formative evaluationBMC Palliative Care.  20. 2021
2021 Exploring Culturally Responsive Religious and Spirituality Health Care Communications among African Americans with Advanced Heart Failure, Their Family Caregivers, and CliniciansJournal of Palliative Medicine.  24:1798-1806. 2021
2021 A research agenda for the question prompt list in outpatient palliative careJournal of Palliative Medicine.  24:1596-1597. 2021
2021 Resilience, preparedness, and distress among family caregivers of patients with advanced cancerSupportive Care in Cancer.  29:6913-6920. 2021
2021 Parentification Among Young Carers: A Concept AnalysisChild and Adolescent Social Work Journal.  38:519-531. 2021
2021 Examining Adherence and Dose Effect of an Early Palliative Care Intervention for Advanced Heart Failure PatientsJournal of Pain and Symptom Management.  62:471-481. 2021
2021 Parent perspectives after the PRISM-P randomized trial: A mixed-methods analysisJournal of Palliative Medicine.  24:1505-1515. 2021
2021 Applying the Multiphase Optimization Strategy for the Development of Optimized Interventions in Palliative CareJournal of Pain and Symptom Management.  62:174-182. 2021
2021 Comparison of Two Methods for Implementing Comfort Care Order Sets in the Inpatient Setting: a Cluster Randomized TrialJournal of General Internal Medicine.  36:1928-1936. 2021
2021 Reconceptualizing how to support surrogates making medical decisions for critically ill patientsJournal of the American Medical Association.  325:2147-2148. 2021
2021 Implementing a Clinic-Based Telehealth Support Service (FamilyStrong) for Family Caregivers of Individuals with Grade IV Brain TumorsJournal of Palliative Medicine.  24:347-353. 2021
2021 The Living Donor Navigator Program Provides Support Tools for Caregivers 2021
2021 Can you hear me now?: Improving palliative care access through telehealthResearch in Nursing and Health.  44:226-237. 2021
2021 Family Caregiver Support of Patient Self-Management During Chronic, Life-Limiting Illness: A Qualitative MetasynthesisJournal of Family Nursing.  27:55-72. 2021
2021 Telehealth in Palliative Care Communication strategies from the COVID-19 pandemicClinical Journal of Oncology Nursing.  25:17-22. 2021
2020 Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill ChildrenJournal of Hospice and Palliative Nursing.  22:456-464. 2020
2020 Effect of instrumental support on distress among family caregivers: Findings from a nationally representative studyPalliative and Supportive Care.  18:519-527. 2020
2020 Effect of an Early Palliative Care Telehealth Intervention vs Usual Care on Patients with Heart Failure: The ENABLE CHF-PC Randomized Clinical TrialJAMA Internal Medicine.  180:1203-1213. 2020
2020 Recommendations to leverage the palliative nursing role during covid-19 and future public health crisesJournal of Hospice and Palliative Nursing.  22:260-269. 2020
2020 Bereaved parents' views on end-of-life care for children with cancer: Quality marker implicationsCancer.  126:3352-3359. 2020
2020 The Family Caregiving Crisis Meets an Actual PandemicJournal of Pain and Symptom Management.  60:e66-e69. 2020
2020 Family Caregiving for Individuals with Heart Failure: A Scientific Statement from the American Heart AssociationCirculation.  141:e864-e878. 2020
2020 A Qualitative Study of Pulmonary and Palliative Care Clinician Perspectives on Early Palliative Care in Chronic Obstructive Pulmonary DiseaseJournal of Palliative Medicine.  23:513-526. 2020
2020 Effects of a Telehealth Early Palliative Care Intervention for Family Caregivers of Persons With Advanced Heart Failure: The ENABLE CHF-PC Randomized Clinical TrialJAMA Network Open.  3:e202583. 2020
2020 Forging a new frontier: Providing palliative care to people with cancer in rural and remote areasJournal of Clinical Oncology.  38:963-973. 2020
2020 Comparing Specialty and Primary Palliative Care Interventions: Analysis of a Systematic ReviewJournal of Palliative Medicine.  23:389-396. 2020
2020 Update in Hospice and Palliative CareJournal of Palliative Medicine.  23:165-170. 2020
2019 Supporting Family Caregivers of Adult and Pediatric Persons with LeukemiaSeminars in Oncology Nursing.  35. 2019
2019 The project ENABLE Cornerstone randomized pilot trial: Protocol for lay navigator-led early palliative care for African-American and rural advanced cancer family caregiversContemporary Clinical Trials Communications.  16. 2019
2019 What do family caregivers know about palliative care? Results from a national surveyPalliative and Supportive Care.  17:643-649. 2019
2019 Strategies and Resources for Increasing the PhD Pipeline and Producing Independent Nurse ScientistsJournal of Nursing Scholarship.  51:717-726. 2019
2019 Surrogates’ Perceptions of Service Quality While Making Decisions for ICU PatientsWestern Journal of Nursing Research.  41:1370-1384. 2019
2019 Needs Assessment for Turkish Family Caregivers of Older Persons with Cancer: First-Phase Results of Adapting an Early Palliative Care ModelJournal of Palliative Medicine.  22:1065-1074. 2019
2019 A formative evaluation of patient and family caregiver perspectives on early palliative care in chronic obstructive pulmonary disease across disease severityAnnals of the American Thoracic Society.  16:1024-1033. 2019
2019 Comparison of Palliative Care Interventions for Cancer versus Heart Failure Patients: A Secondary Analysis of a Systematic ReviewJournal of Palliative Medicine.  22:966-969. 2019
2019 HPNA 2019-2022 Research Agenda: Development and RationaleJournal of Hospice and Palliative Nursing.  21:E17-E23. 2019
2019 Top Ten Tips Palliative Care Clinicians Should Know about Telepalliative CareJournal of Palliative Medicine.  22:981-985. 2019
2019 Disparities in Hospice Utilization for Older Cancer Patients Living in the Deep SouthJournal of Pain and Symptom Management.  58:86-91. 2019
2019 Toward a Conceptual Model of Affective Predictions in Palliative CareJournal of Pain and Symptom Management.  57:1151-1165. 2019
2019 Using Patients and Their Caregivers Feedback to Develop ENABLE CHF-PC: An Early Palliative Care Intervention for Advanced Heart FailureJournal of Palliative Care.  34:103-110. 2019
2019 Update in Hospice and Palliative CareJournal of Palliative Medicine.  22:357-363. 2019
2019 How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative studyPLoS One.  14. 2019
2019 Population-based profile of mental health and support service need among family caregivers of adults with cancerJco Oncology Practice.  15:E122-E131. 2019
2018 Factors Associated with Family Caregivers' Confidence in Future Surrogate Decision Making for Persons with CancerJournal of Palliative Medicine.  21:1705-1712. 2018
2018 Protocol driven palliative care consultation: Outcomes of the ENABLE CHF-PC pilot study 2018
2018 Educate, Nurture, Advise, Before Life Ends Comprehensive Heartcare for Patients and Caregivers (ENABLE CHF-PC): Study protocol for a randomized controlled trialTrials.  19. 2018
2018 Incongruence between women's survey- and interview-determined decision control preferences: A mixed methods study of decision-making in metastatic breast cancer 2018
2018 IntroductionSeminars in Oncology Nursing.  34:189-191. 2018
2018 Adapting an Early Palliative Care Intervention to Family Caregivers of Persons With Advanced Cancer in the Rural Deep South: A Qualitative Formative EvaluationJournal of Pain and Symptom Management.  55:1519-1530. 2018
2018 Family companions’ involvement during pre-surgical consent visits for major cancer surgery and its relationship to visit communication and satisfactionPatient Education and Counseling.  101:1066-1074. 2018
2018 Lay patient navigators’ perspectives of barriers, facilitators and training needs in initiating advance care planning conversations with older patients with cancerJournal of Palliative Care.  33:70-78. 2018
2018 Mind-Body Interventions for Individuals With Heart Failure: A Systematic Review of Randomized TrialsJournal of Cardiac Failure.  24:186-201. 2018
2018 Participation and interest in support services among family caregivers of older adults with cancer 2018
2018 Developing a toolkit to measure implementation of concurrent palliative care in rural community cancer centersPalliative and Supportive Care.  16:60-72. 2018
2018 Translating a US early palliative care model for Turkey and SingaporeAsia-Pacific Journal of Oncology Nursing.  5:33-39. 2018
2018 What happens during early outpatient palliative care consultations for persons with newly diagnosed advanced cancer? A qualitative analysis of provider documentationPalliative Medicine.  32:59-68. 2018
2017 The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancerHealth Psychology.  36:1140-1146. 2017
2017 Update in Hospice and Palliative CareJournal of Palliative Medicine.  20:1291-1292. 2017
2017 Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science reviewHeart Failure Reviews.  22:543-557. 2017
2017 Highlighting implementation findings in early palliative careJco Oncology Practice.  13:599-600. 2017
2017 Supporting cancer family caregivers: How can frontline oncology clinicians help?Cancer.  123:3212-3215. 2017
2017 Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: Results of the ENABLE CHF-PC pilot clinical trialBMC Palliative Care.  16. 2017
2017 The self-care practices of family caregivers of persons with poor prognosis cancer: differences by varying levels of caregiver well-being and preparednessSupportive Care in Cancer.  25:2437-2444. 2017
2017 When it comes to death, there is no place like home… Or is there?Palliative Medicine.  31:391-393. 2017
2017 Implementation and Impact of Patient Lay Navigator-Led Advance Care Planning ConversationsJournal of Pain and Symptom Management.  53:682-692. 2017
2017 Looking Back, Moving Forward: A Retrospective Review of Care Trends in an Academic Palliative and Supportive Care Program from 2004-2015 (S744)Journal of Pain and Symptom Management.  53:434. 2017
2017 Perioperative Palliative Care Considerations for Surgical Oncology NursesSeminars in Oncology Nursing.  33:9-22. 2017
2017 There were more decisions and more options than just yes or no: Evaluating a decision aid for advanced cancer patients and their family caregiversPalliative and Supportive Care.  15:44-56. 2017
2016 Association between palliative care and patient and caregiver outcomes: A systematic review and meta-analysisJournal of the American Medical Association.  316:2104-2114. 2016
2016 Family Caregiver Depressive Symptom and Grief Outcomes From the ENABLE III Randomized Controlled TrialJournal of Pain and Symptom Management.  52:378-385. 2016
2016 Supporting family caregivers of Turkish elders: A systematic reviewJournal of Hospice and Palliative Nursing.  18:256-267. 2016
2016 Associations between advanced cancer patients' survival and family caregiver presence and burdenCancer Medicine.  5:853-862. 2016
2016 Update in Hospice and Palliative CareJournal of Palliative Medicine.  19:559-565. 2016
2016 Vulnerable Population Challenges in the Transformation of Cancer CareSeminars in Oncology Nursing.  32:144-153. 2016
2016 Coaching Family Caregivers to Become Better Problem Solvers When Caring for Persons with Advanced Cancer 2016
2016 A Blue Ocean Strategy for Palliative Care: Focus on Family CaregiversJournal of Pain and Symptom Management.  51:e1-e3. 2016
2016 An integrated review of interventions to improve psychological outcomes in caregivers of patients with heart failureCurrent Opinion in Supportive and Palliative Care.  10:24-31. 2016
2016 Complex Care Options for Patients With Advanced Heart Failure Approaching End of LifeCurrent Heart Failure Reports.  13:20-29. 2016
2016 Racial differences in processes of care at end of life in VA medical centers: Planned secondary analysis of data from the BEACON trialJournal of Palliative Medicine.  19:157-163. 2016
2015 Reply to R.A. Ferrer et al and B.W. CornJournal of Clinical Oncology.  33:4230-4231. 2015
2015 Improving the quality of palliative care through national and regional collaboration efforts 2015
2015 Systematic review of palliative care in the rural setting 2015
2015 Priorities for Evaluating Palliative Care Outcomes in Intensive Care UnitsCritical Care Nursing Clinics of North America.  27:395-411. 2015
2015 Predictors of physical restraint use in hospitalized veterans at end of life: An analysis of data from the BEACON trialJournal of Palliative Medicine.  18:520-526. 2015
2015 What were they thinking?Journal of Hospice and Palliative Nursing.  17:249-256. 2015
2015 Benefits of early versus delayed palliative care to informal family caregivers of patients with advanced cancer: Outcomes from the ENABLE III randomized controlled trialJournal of Clinical Oncology.  33:1446-1452. 2015
2015 Conceptualizing surrogate decision making at end of life in the intensive care unit using cognitive task analysisNursing Outlook.  63:331-340. 2015
2015 Early versus delayed initiation of concurrent palliative oncology care: Patient outcomes in the ENABLE III randomized controlled trialJournal of Clinical Oncology.  33:1438-1445. 2015
2015 A Hermeneutic Phenomenological Understanding of Men’s Healing From Childhood MaltreatmentJournal of Holistic Nursing.  33:46-57. 2015
2014 Translating and testing the ENABLE: CHF-PC concurrent palliative care model for older adults with heart failure and their family caregiversJournal of Palliative Medicine.  17:995-1004. 2014
2013 Palliative care consultations for heart failure patients: How many, when, and why?Journal of Cardiac Failure.  19:193-201. 2013
2013 A synthesis of theoretical models to guide decision support interventions for surrogate decision-making at adult end-of-lifeEuropean Journal for Person Centered Healthcare.  1:274. 2013
2012 Why Surrogates Don’t Make Decisions the Way We Think They Ought To: Insights from Moral PsychologyJournal of Hospice and Palliative Nursing.  14:99-106. 2012


Year Title Altmetric
2019 Psychoeducational Interventions for Cancer Caregivers 2019
2019 Palliative Care in Heart Failure.  559-570. 2019
2019 Rural Palliative Care.  670-681. 2019
2019 Supporting Families in Palliative Care 2019
2015 Rural Palliative Care 2015

Education And Training

  • Doctor of Philosophy in Nursing Science, Boston College 2013
  • Master of Nursing in Adult Health Nurse / Nursing, Boston College 2010
  • Master of Arts in Philosophy, Teachers College/Columbia University 2006
  • Bachelor of Nursing in Registered Nursing / Registered Nurse, Florida State University 2002
  • Full Name

  • James Dionne-Odom