Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin

Academic Article

Abstract

  • After-death research with next-of-kin can enhance our understanding of end-of-life care and translate into better services for dying persons and their survivors. This article describes ethical and methodological issues that emerged in a pilot of a face-to-face interview guide designed to elicit next-of-kin's perceptions of end-of-life care. The pilot study was part of a larger Veterans Affairs (VA) Health Services Research protocol to improve end-of-life care in VA Medical Centers. By deconstructing the research process from an ethical perspective and engaging in critical self-assessment, the authors aim to inform other researchers of potential problems involved in after-death research with next-of-kin.
  • Published In

  • Death Studies  Journal
  • Digital Object Identifier (doi)

    Author List

  • Williams BR; Woodby LL; Bailey FA; Burgio KL
  • Start Page

  • 197
  • End Page

  • 236
  • Volume

  • 32
  • Issue

  • 3