Formative research in the development of a care transition intervention in breast cancer survivors.

Academic Article

Abstract

  • PURPOSE: The purpose of this qualitative study was to evaluate breast cancer survivors' (BCS) responses to a self-management survivorship care transition intervention in the formative development of such an intervention. The experience of BCS is marked by uncertainty and anxiety about subsequent care, and a desire for more information about future care needs and late effects of treatment. Self-management strategies have demonstrated improved outcomes in chronic illness, and may address the unmet needs of breast cancer survivors. METHODS AND SAMPLE: Five focus and discussion groups each were conducted at a single site in the Southeastern United States with a total of twenty breast cancer survivors. BCS were presented with a description of a survivorship transition intervention that encouraged self-management. Groups were led by a trained moderator using a semi-structured guide with 7 open-ended questions about their care transition experience and response to the proposed intervention. A theoretically-derived, concept-guided coding strategy was developed after review of transcripts. Iterative constant comparative methods were used to ensure that transcripts were reviewed exhaustively for emerging codes and relationships. KEY RESULTS: Three dominant themes emerged around readiness for self-management: 1) the breast cancer experience as a catalyst for self-management; 2) fear of recurrence as a catalyst for self-management; and 3) the impact of the meaning of breast cancer on individual readiness for self-management. CONCLUSIONS: These findings contribute to further development of a conceptual model and interventions built on BCS self-management to improve the survivorship experience.
  • Published In

    Keywords

  • Breast cancer, Qualitative research, Self-management, Survivorship, Transitional care, Adaptation, Psychological, Adult, Aged, Breast Neoplasms, Female, Focus Groups, Humans, Middle Aged, Nursing Research, Qualitative Research, Self Care, Survivors, Transitional Care
  • Digital Object Identifier (doi)

    Author List

  • Kvale EA; Meneses K; Demark-Wahnefried W; Bakitas M; Ritchie C
  • Start Page

  • 329
  • End Page

  • 335
  • Volume

  • 19
  • Issue

  • 4